We want people with vision loss to lead fulfilling lives, and we want to see a cure for inherited retinal diseases.

Mission Statement

Our Mission is to empower people with inherited blindness by:
  • providing support for people with inherited blindness
  • keeping our members informed of new research and other information
  • increasing the awareness of inherited eye diseases in the broader community
  • lobbying for support for people with inherited retinal diseases
  • collaborating with other national and international inherited blindness and service organisations
  • raising funds for support and research.
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Our Objective

To provide the best levels of support to all those affected by vision loss.

Retina Australia (Vic) Inc. is a non-profit self-help organization for people affected by retinal diseases, their families and their friends. Our focus is on providing services to promote equality and support for those in the community who have inherited retinal diseases. We can advise you on what to do and where to go if you, or someone you know, is confronted with a retinal disease.

Retina Australia (Vic) is run by volunteers with first-hand experience of the restrictions caused by limited vision. We can give encouragement and peer support to people with inherited blindness as they adjust to the early stages of vision loss. Our role also includes fund raising for research into the causes and possible cures for retinal dystrophies. We work to increase public awareness of a disease that in its various forms affects directly and indirectly approximately 10,000 people in Victoria. The great hope of Retina Australia (Vic) and people with inherited blindness is that through the continued funding of scientific research, a way to prevent and cure these diseases will be discovered.

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The Retinitis Pigmentosa Society of Victoria Inc. was established in 1979 as a response to the lack of information available about retinitis pigmentosa, and the lack of treatment available. The Society functioned as a support and self-help group addressing the needs of those affected by the condition.

One of the primary objectives of the Retinitis Pigmentosa Society was to generate an environment of mutual support and self-determination, where by delivering appropriate information to those with RP, hope and encouragement could be given.

Image of Ross House Building In 1984 the Society became registered as a charity, and in 1985 was incorporated. October of the same year saw the first National conference, which was held in Melbourne. This meeting resulted in the affiliation of many services and professionals in the medical field.

A well-sponsored international congress, also held in Melbourne in 1988, brought together a large gathering of associates, including many world-renowned scientists and researchers. This event sparked interest in Australian research into inherited blindness.

In 1999 we decided to extend support to all people with inherited retinal dystrophies, including retinitis pigmentosa. Thus, the Retinitis Pigmentosa Society of Victoria was renamed Retina Australia (Vic.) Inc.

In 2002 and 2015 we hosted the Retina Australia National Congress in Melbourne, Australia. These and other achievements in more than 35 years of activism have helped to improve the quality of life of those afflicted with inherited blindness, and bring us closer to a cure.

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